The group is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families and carers. Originally formed over 28 years ago, the original Branch has undergone a number of organisational changes. These changes included changing to a fundraising Group because of the lack of committee members and eventually relaunching the current Group structure in February 2007. Remaining flexible is a key feature to our success and we are very proud that the founding members are still very much part of and completely involved in the Group’s activities.
Our Group Objectives are to support people affected by MND in the Swindon and North Wiltshire are, to raise awareness of MND and the MND Association and to fundraise locally.
Getting involved with your Local Group is an excellent way of meeting people in similar circumstances and supporting the work of the Motor Neurone Disease Association (MND Association). New members are always welcome, whether or not they have experience of the disease and their help is greatly appreciated. We always need volunteers for a variety of jobs with the Group.
Our Group Objectives are to support people affected by MND in the Swindon and North Wiltshire are, to raise awareness of MND and the MND Association and to fundraise locally.
Getting involved with your Local Group is an excellent way of meeting people in similar circumstances and supporting the work of the Motor Neurone Disease Association (MND Association). New members are always welcome, whether or not they have experience of the disease and their help is greatly appreciated. We always need volunteers for a variety of jobs with the Group.
Meet The Team
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Alison AvissAssociation Visitor Coordinator and Leader of North Wiltshire GroupHaving lost my Mum to MND, I wanted to do all I could to support other families affected by this disease
alisonaviss@mndnorthwiltshire.org.uk |
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Heather SmithVice Chair and Campaigns Contact of the North Wiltshire Group, and Trustee of the national MND AssociationAfter the death of my partner Steve from MND in 2012, I wanted to get involved with the group and support people locally living with and affected by MND.
campaigning@mndnorthwiltshire.org.uk |
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Barbara CrookSecretary and Correspondent for the North Wiltshire GroupTo support people with MND and their families by raising awareness and promoting the need for care improvement.
secretary@mndnorthwiltshire.org.uk |
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Anita Creamer
Association Visitor
I was a health care professional for 40 years and when I retired I joined MND North Wilts and trained as a AV
anitacreamer@mndnorthwiltshire.org.uk |
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Nora FletcherFinanceTo support those volunteers dedicating much of their time supporting people with MND
info@mndnorthwiltshire.org.uk |
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Alex NobleWeb EditorAfter the death of my great grandmother, I wanted to use my skills in IT to support MND North Wilts.
info@mndnorthwiltshire.org.uk |
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Andrew SargentNewsletter EditorI wanted to give something back, and am glad to be able to use my professional skills to support the fight against MND.
info@mndnorthwiltshire.org.uk |
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Jo HydeHealth Professional at Prospect HospiceI believe that people living with MND and their families deserve to access the appropriate support in a timely way.
info@mndnorthwiltshire.org.uk |
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Susanne WebbSupport Meeting FacilitatorI previously was a volunteer holistic therapist at the Prospect Hospice and met several people there with MND and wanted to help them. I was asked to go along to the MND Support Group meetings to offer therapies to people with MND and their carers & became involved with the group. I later became an Association Visitor for several years.
info@mndnorthwiltshire.org.uk |
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Theresa WilliamsFundraiserA close family member was diagnosed with MND in late 2016 and sadly passed away in February 2018. Having seen the caring support and help provided by the group I wanted to contribute to helping other people with the disease.
fundrasing@mndnorthwiltshire.org.uk |
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Natasha FlintoftCarer's ChampionTo help make a small difference to people’s lives that are
affected by this cruel disease. info@mndnorthwiltshire.org.uk |
Association Representatives
There are also three nationally employed representatives of the Association who work in this area.
Neil Drinkwater
Regional Care Development Adviser, Bristol and West
Mobile: 07831 349398
Email: neil.drinkwater@mndassociation.org
Neil provides detailed knowledge of the care and management of Motor NeuroneDisease. Working closely with local statutory services and community careproviders, she is able to provide support and advice to people living with MND
Jo Campbell
Volunteer Development Coordinator for South West & Thames Valley
Mobile: 07831 098365
Email: jo.campbell@mndassociation.org
Jo provides advice and support to Branches and Groups and helps to set up and develop new regional and national contacts and assistance with recruitment of new volunteers.
Sarah Cummins - Regional Fundraiser Manager (South & East)
Tel: 07918 745243
Email: sarah.cummins@mndassociation.org
Sarah provides help, advice and fundraising support to our Branches and Groups in the South West. Sarah also works with individual fund raisers in the South West.
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Registered Charity Number in England: 294354
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