About MND
Motor Neurone Disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting. MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.
Although there is currently no cure for MND, symptoms can be managed to help those affected achieve the best possible quality of life.
If you would like more information on MND please visit the main association's website which has a wealth or information. You can access the site by clicking this link.
The information sheet, Understanding & Coping with Bereavement, has been updated - there are many publications and information sheets available to download and read from www.mndassociation.org/publications
In May 2014 a new publication, End of life: a guide for people with motor neurone disease became available. The new guide provides comprehensive and candid information on how to plan ahead, in response to feedback from people with or affected by MND.
Dr Bee Wee, National Clinical Director for End of Life Care at NHS England called it: "a much needed guide that will act as a bridge between families affected by MND and the health and care professionals who support them. It discusses complex decisions using honest and straightforward language, yet with sufficient detail to be genuinely helpful...This guide will help people to feel more in control of the options available to them."
One of our priorities is to ensure more people with MND, wherever they live, will be able to access specialist palliative and end of life care. This includes providing better information about the options and services available at end of life. We hope this guide will help more people with MND, their families and carers, to better navigate and manage their end of life care.
The new guide includes:
Although there is currently no cure for MND, symptoms can be managed to help those affected achieve the best possible quality of life.
If you would like more information on MND please visit the main association's website which has a wealth or information. You can access the site by clicking this link.
The information sheet, Understanding & Coping with Bereavement, has been updated - there are many publications and information sheets available to download and read from www.mndassociation.org/publications
In May 2014 a new publication, End of life: a guide for people with motor neurone disease became available. The new guide provides comprehensive and candid information on how to plan ahead, in response to feedback from people with or affected by MND.
Dr Bee Wee, National Clinical Director for End of Life Care at NHS England called it: "a much needed guide that will act as a bridge between families affected by MND and the health and care professionals who support them. It discusses complex decisions using honest and straightforward language, yet with sufficient detail to be genuinely helpful...This guide will help people to feel more in control of the options available to them."
One of our priorities is to ensure more people with MND, wherever they live, will be able to access specialist palliative and end of life care. This includes providing better information about the options and services available at end of life. We hope this guide will help more people with MND, their families and carers, to better navigate and manage their end of life care.
The new guide includes:
- the benefits of planning ahead
- how to communicate your wishes, preferences and needs with family, friends and health and social care professionals
- how to access support
- how to put personal affairs in order
- information about medical treatments and what can be done if they are no longer helping.
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Registered Charity Number in England: 294354
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